Mary Fridley & Gwen Lowenheim presenting for Susan Massad - ‘Creating a New Performance of Dementia’

<p>Season five of our podcast continues with another presentation from our 2020 annual conference: ‘Engaged Phenomenology’ Online. This episode features a presentation written by Mary Fridley & Susan Massad, with Gwen Lowenheim presenting for Susan Massad, all from The East Side Institute, New York City.</p> <p> </p> <p>ABSTRACT: As viewed through a biomedical lens – which remains the dominant way in which dementia is seen – Alzheimer’s and related dementias (ADRD) is seen primarily as a condition of loss of capabilities within an individual: of speech, of cognitive abilities, of physical capacities and, eventually, of life while research and treatment is directed toward cure of the  individual. Dementia activists across the globe are now raising the question: Is the shame, stigma, and isolation that people with ADRD and their families experience in large part a result of this very narrow lenses through which dementia is understood? In this paper we will present on the Joy of Dementia (You’ve Got to Be Kiddin!) project, a  playful, philosophical and conversational collective exploration of the dementia experience as an effort to introduce a different lens – a development lens – as a counter narrative that challenges the current “tragedy narrative” surrounding ADRD. Seen through a development lens, humans are no longer are viewed, not as discrete and isolated individuals but as relational beings, connected to one another in ways that allows us to grow with, rather than fear, uncertainty.  In this view, a dementia diagnosis presents transformational opportunities not just for the individual diagnosed, but to everyone in the “dementia ensemble” – including people of all ages who fear growing older and losing cognitive abilities. The workshops, always experiential, often involve mixed groupings of family members, care givers, professionals and those diagnosed, introduces improvisational play and philosophical conversation as activities that support the discovery of new ways of relating, being together, listening