"Nothing to Lose": Patients Fight to Be Heard

<p>Today we have two powerful stories. Each one is as different as the disease that it’s about. Yet there is a common thread: patients want and need to be heard. You will hear from a mom who will do whatever it takes to save her son’s life.  And you will learn about a young woman who is fighting for herself and her underserved patient community.  </p><p>Guests:</p><p>Amber Freed, <a href="https://slc6a1connect.org/our-founder/">SLC6A1 Connect</a></p><p>Melodie Blackwell, <a href="https://www.cocci.org/board-of-directors">COCCI</a></p>