68 - Meet Emma & Abby - Part 1

Today we have with us Mark and Mariah the parents to Emma and Abby from Centennial, Colorado. These sweet sisters not only share a powerful sibling bond, but also share an ultra-rare undiagnosed genetic mutation that is so rare that they are the first two cases in the world. This mutation leads to infantile Spasms, Epilepsy, Lennox-Gastaut Syndrome and more. <br />They share with us their very unique medical journey as well as the impact their close community has had on them. <br />This is Part 1 of 2. <br /><br />Connect with Mark and Mariah<br /><a href="http://www.lightningandlove.org" rel="noopener">www.lightningandlove.org</a><br /><a href="https://www.instagram.com/lightningandlove/" rel="noopener">https://www.instagram.com/lightningandlove/</a><br /><a href="https://twitter.com/mariahgillaspie" rel="noopener">https://twitter.com/mariahgillaspie</a><br /><br />Connect with Go Shout Love:<br /><a href="https://goshout.love" rel="noopener">https://goshout.love</a><br /><a href="https://www.instagram.com/goshoutlove/" rel="noopener">https://www.instagram.com/goshoutlove/</a><br /><a href="https://www.facebook.com/goshoutlove/" rel="noopener">https://www.facebook.com/goshoutlove/</a>