191 - A Mother Who Never Stops

<p><!-- wp:paragraph --></p> <p><span style= "font-family: -apple-system, BlinkMacSystemFont, 'Segoe UI', Roboto, Oxygen, Ubuntu, Cantarell, 'Open Sans', 'Helvetica Neue', sans-serif;"> Tracy Dixon Salazar is a mother, scientist, and Executive Director of the Lennox-Gasteau Syndrome Foundation.</span></p> <blockquote> <p><span style= "font-family: -apple-system, BlinkMacSystemFont, 'Segoe UI', Roboto, Oxygen, Ubuntu, Cantarell, 'Open Sans', 'Helvetica Neue', sans-serif;"> "I don't think we should be writing off Rare disease Patients and assigning them death sentences anymore. I think we should be rolling up our sleeves and doing a covid like movement to actually start saving some people's brains"</span></p> <p><cite>Tracy Dixon-Salazar</cite></p> </blockquote> <p>Lennox-Gastaut Syndrome (LGS) is a severe epilepsy syndrome that develops in young children and often leads to lifelong disability.</p> <p><!-- /wp:paragraph --> <!-- wp:paragraph --></p> <p><a href="https://lgsfoundation.com" target="_blank" rel= "noreferrer noopener">The LGS Foundation</a> is a nonprofit organization dedicated to improving the lives of individuals impacted by LGS through advancing research, awarenesss, and family support.</p> <p><span style="font-size: 10pt;">Advertisement:</span></p> <p><span style="font-weight: 400;">In 2017, Horizon Therapeutics launched the #RAREis program designed to elevate the voices, faces and experiences of people living with rare diseases, as well as highlight programs and resources tailored to the rare disease community. Visit <a title="#RAREis" href= "https://rareiscommunity.com" target="_blank" rel= "noopener">rareiscommunity.com</a> for more info.</span></p> <p><!-- /wp:quote --></p>