159. DSALA and DSC2U: Supporting Our Spanish-Speaking Community
159. DSALA and DSC2U: Supporting Our Spanish-Speaking Community

159. DSALA and DSC2U: Supporting Our Spanish-Speaking Community

በፍቅር አይፎክሩ

44 min
Parents' Classroom
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Description

<p>Today we are joined by Sandra Baker from the Down Syndrome Association of Los Angeles (DSALA) and Dr. Brian Skotko from the Down Syndrome Clinic To You (DSC2U) to discuss their collaboration in supporting Spanish-Speaking families that have a member with Down syndrome.  </p> <p>DSC2U: <a href='http://www.DSC2U.org'>www.DSC2U.org</a></p> <p>DSALA: <a href='http://www.DSALA.org'>www.DSALA.org</a></p> <p>DSALA Contact:</p> <p>(818) 786-0001</p> <p><a href='mailto:info@DSALA.org'>info@DSALA.org</a></p> <p class="p3">NOTES FROM DR. SKOTKO:</p> <ul class="ul1"><li class="li3">We have written a summary paper for the lay audience to help them access and understand all of our research findings (available in <a href='https://drive.google.com/file/d/1AanqB1yn8khTmLthi0rOaseCjnYr8hCs/view?usp=sharing'>English</a> and <a href='https://drive.google.com/file/d/1t87ZW7DRC0b1N1wjA8TEIvhHoPLoujdP/view?usp=sharing'>Spanish</a>).</li> <li class="li3">We have created ready-to-go Facebook posts (<a href='https://docs.google.com/document/d/170a-RdRQ5gaXXuqq0W73iL3dQSR1srX5p2WRLKB0MUo/edit?usp=sharing'>English</a> and <a href='https://docs.google.com/document/d/1VFStyCFRCYNaIDgC-XDn8NqZrIM7Q8XNyx0zuFh1_0A/edit?usp=sharing'>Spanish</a>) and Twitter posts (<a href='https://docs.google.com/document/d/13w5S441t0Z_lmRZmawR3Ex8ScnPvsENEeq2CxqoDwAA/edit?usp=sharing'>English</a> and <a href='https://docs.google.com/document/d/11__Nq9zOSfGHg7gM9kltmjFBxqYAID37rAvA41f4aLU/edit?usp=sharing'>Spanish</a>), summarizing our research findings.</li> <li class="li3">We also developed this <a href='https://docs.google.com/document/d/1Quup3JaZhV66_fnAark5SwTfS761XT2a11AbWugDNks/edit?usp=sharing'>Awareness Building event toolkit</a>, so that Down syndrome groups can continue to host meaningful diversity dialogues in their community.  We provide ready-to-go materials and easy action steps.</li> <li class="li3">Albert Pless and I gave Grand Rounds at UCSF Benioff Children's Hospital and our own MGH Genetics Division about our research findings.  The record

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