036: The Realities of Families With Special Needs Children - W/ The Family

<span style="font-weight: 400;">I come from a family of 6, and you must have seen and heard from 4 of my family members - mom, dad, my older sister Leslie and younger brother Musaga. However, many of you have never heard about my other brother Bayong, who is the youngest sibling.</span> <p> </p> <p><span style="font-weight: 400;">Bayong was born just like any of us but had a seizure disorder, which changed the trajectory of his life, as well as the rest of our lives. Today, we sit down for the first time to share his story and also open up about our experience growing up with him and how that has impacted our lives. This is definitely a vulnerable moment like never before. If you think you knew me, well, you will get to really know me through this conversation. Heck, I also got to learn a lot about my family like never before.</span></p> <p> </p> <p><span style="font-weight: 400;">For the first time on this platform, I was the host and guest at the same time. It felt great to bare my emotions all out with my family and I hope that our story doesn’t only inspire families going through a similar experience, but encourages us all to be sensitive to what these families with special needs children are going through. In honor of National Epilepsy Awareness Month, here is to Bayong and every other special needs child who has been impacted by epilepsy! We love you!</span></p> <p>Things you will learn in this episode:</p> <p><strong>[00:01 – 04:42] Introduction</strong></p> <ul> <li style="font-weight: 400;" aria-level="1"><span style= "font-weight: 400;">Introducing the guest and sharing a brief background on the topic.</span></li> </ul> <p><strong>[04:42 – 24:32] Mom & Dad shares the story of how it all began</strong></p> <ul> <li style="font-weight: 400;" aria-level="1"><span style= "font-weight: 400;">The troubling  pregnancy</span></li> <li style="font-weight: 400;" aria-level="1"><span style= "font-weight: 400;">Childbirth and issues afterward</span></li> <li style="font-weight: 400;" aria-level="1"><span style= "fo